Tuesday, October 5, 2010

My pally, Henry

I'm sure everyone knows by now that October is Breast Cancer Awareness, right? I mean, I've got my mammogram scheduled for today after work (ouch) and you see those pink ribbons everywhere. They've been very successful in getting that message across.

But did you know it is also Down Syndrome Awareness Month as well?? My pally, Christy at Motherhood Unscripted writes about it and I encourage you to visit her blog as she posts about her son, Henry, for the month of October. I hope this message of understanding and compassion for those with Down's Syndrome also gets the exposure it deserves.

Christy has 4 children, one being Henry, her son with Down's Syndrome. He is absolutely adorable, but he also goes through the trials and tribulations of childhood like every other kid. The only difference is that Henry sometimes does things differently or perhaps catches on a bit slower. Christy writes a beautifully honest blog about her family and focuses on every family member, not just Henry.

When I was growing up, my mom was part of a small group of people who brought religious education to the mentally handicapped kids in our community. I was fortunate to grow up knowing this group of special kids, sharing and talking about God, while learning what being mentally handicapped means. I saw first hand the kindness and love that they share and how awful unknowing people can be.

Our home was open to the likes of Jerry and Frank, two of the sweetest guys ever--who permanently remain in my heart. And one night, when asked to say a prayer to God, Frank prayed that when he and Jerry got to heaven, he wanted God to make Jerry's legs straight again. You see, Jerry was crippled and Frank wanted to make sure Jerry could walk with him in heaven.

I was forever touched by that experience and so I have this special place in my heart for little Henry. I love to read about his adventures--good, bad, and indifferent, because I know that each milestone is a mountain that he has climbed and how incredibly patient and loving his family is.

One of my very favorite photos is this one--it is Henry after dressing himself for the day. I love how this photo boasts of Henry's diligence in his job of getting dressed alone and his complete indifference to that challenge. He is a proud warrior, that Henry. And I love that he did his job and went on with the day.


It isn't how silly he looks that makes me smile--it is his pure determination that warms my heart. Do you know how freaking difficult this must have been to pull off???! Homeboy has some creative problem-solving skills.

Having Down's Syndrome doesn't mean that you are stupid or that you can't hear nasty comments said about you. It merely means that you have an extra chromosome that makes things just a tad harder. Or you just have to be a little more creative in how you tackle life.

Pass the word this October, pallies. Henry rocks!

23 comments:

A.Marie said...

I have such a heart for children like Henry! You are completely right....Henry Rocks!!! :)

Helene said...

I met a little girl with Down's many years ago. After spending time with her I was sure these kids are God's special angels. She was the happiest little girl I had ever met.

Catherine said...

This photo ~ adorable ~ the story ~ very touching!

Very good thoughts here today Lin!
xo Catherine

Christy said...

YOU ARE SO AWESOME! What a blessing to my heart to read your thoughts on Henry and choosing this picture is just completely awesome. "Creative problem-solving skills", indeed.
Thank you for posting this and for loving my little guy.

vanilla said...

I am blessed to have several friends with Down's Syndrome. Some of the most loving people in the world are 1) these people, and 2) their parents.

Anne said...

I think Down's is definitely a challenge but most of the kids I have encountered are such good people that they are blessed in different ways.

Secondary Roads said...

Not only are our friends with Down Syndrome loving, they are guileless. The definition of integrity, what you see on the outside is what is on the inside. It's a pity that more folk aren't that way.

JODI said...

I am waling around with my prescription for my mammogram in my purse--for a month now. Ssssshhhh. I know.

Henry, and my good friend's late son, Wyatt (who had DS), is exactly why I HATE when people use the word retard. I think there are more people in this world with the prescribed number of chromosones who are more off than those who are diagnosed mentally challanged.

June Zach (Fledgling Blogger) said...

Henry looks real cool in the photo! :D

You've got such a warm and touching post, Lin. :)

Pricilla said...

Maybe he is starting a new fashion trend. We might all be dressing that way next year.

Hot Rocks said...

Thanks Lin...lovely story. The photo put a smile on my face....what a little trooper!

Ann said...

Good for Henry, I kind of like the look. It's cute :)

Anonymous said...

I love your post today...

Years ago I used to travel downtown on the train with a gentlemen who had DS. His name was Chuck and when he would see me coming he used to yell my name from the platform..."WENDY...IT'S ME CHUCK...I AM OVER HERE...WAITING FOR YOU!" Every morning I heard that voice... One morning Chuck was no where to be found... I later found out that he had passed away... I missed his spirit terribly...he was the kindest and most courteous person I have ever met. Little did I know that those years of hearing my name "paged" down the train platform at 6:50am would have changed my life so dramatically. I miss Chuck...but most of all I miss his love for life!

Thank you again for your post...it brought back many fond/happy memories of a dear friend I once had.

Wen

BeadedTail said...

Wonderful story, sweet photo and beautiful post today Lin! Thanks for reminding us about these special folks!

Lin said...

A. Marie--I'm glad times are changing and folks are a lot more sensitive. I hope it changes forever.

Helene--But that comes from her parents--they saw to it that she was happy. How lucky she was to be loved so.

Catherine--I have been saving that photo for months because I love it so. I was grateful to Christy for letting me post it today. It makes me smile.

Christy--This is one of my favorite photos of Henry, although the one yesterday with him sitting is adorable too. I know he is not always adorable, but I think those sparkling eyes must make it easier to cope. :) LOVE your blog, Christy. I love your adventures AND your honesty.

Vanilla--"Their parents". Yep. I watch my neighbor and the hard work it entails to help her son. She isn't very nice about it though, and I struggle with that. But, I can't begin to judge when I see how tough some days can be.

Anne--It's a tough one, but I see so many advances in the opportunities and the schooling that is available these days. Back in my day, the church would not allow them to use their facility for our little church group. Go figure.

Chuck--I agree with you. There are no games, no lies, no pretending. I like that too.

Jodi--Dang, the boobies are KILLING me now. Ugh. But I'm done for another year. Go get it done before it gets crowded. I refuse to let anyone use that word around me. It incites me to no end. Even my kids do not use that word--it's worse than any cuss word to me.

June Zach--Isn't he a hoot?! I can't even imagine how he did that! Or worse yet--how he got out of that!!!

Pricilla--Yeah, but we'd better start doing yoga in order to dress that way! ;)

Hot Rocks--Isn't he a doll?! Go to the blog and see his adorable smiley face. He has the most incredible sparkly eyes!

Ann--I have this image of him, in his room, struggling with that arm hole and trying to figure out where it goes. Isn't he a doll? Go look at his sweet face on Christy's blog.

Wen--Awww, that is so sad, Wen! Aren't you blessed for having known him? I think so. And now you have Chuck, the angel, to watch over you. I count you lucky.

Beaded Tail--I've been waiting to post that photo of Henry--which makes me smile. I think Christy gave me permission to post that MONTHS ago--how lucky I am to have this opportunity. :) She writes a great blog and Henry is just one of many great stories.

Sharkbytes said...

Nice post. I've been reading Chase and More http://chaseandmore.blogspot.com/ about a little DS guy.

Rebecca said...

I have met some kids with Down's Syndrome before. All I can say is that even though they may be missing a chromosome, God gave them a bigger heart. Cuz every single kid I've met has been the sweetest, most adorable and generous kid EVER. God bless them.

And I LOVE that photo! I think I do that some mornings, and I even have all my chromosomes!!

Lin said...

Sharky--Oh, nice link. Thanks for introducing me to a new blog!

Rebecca--I think I like Chuck's comment best when he said that they are most just honest with their feelings, emotions, and intentions. Maybe I'm generalizing, but I think he nailed it.

Nancy said...

Awh, what a cutie! I'm so glad to see you spouting about this great life tidbit! I had no idea you were able to have such a great experience growing up! I do have to say- one good thing about current public school policies is that kids like Henry get maximum exposure in homeroom classrooms as is right for them. This really teaches the other children the meaning of individuality, patience, and compassion. Rarely do I ever hear kids making fun of children with special needs these days (well...young ones anyway), but more curiosity which leads to great understanding. I'm hoping that this opportunity to learn about each other's differences will lead to future kindness among all!

Jen Chandler said...

Henry is adorable. That DID take a lot of determination to get that shirt on :) I'm impressed!

It takes special people to teach these special children. Seriously. I admire people who do! Things have really changed since I was a kid. I agree with the comment above mine, that you don't hear kids making fun of special needs children that much these days. See! There IS hope for humanity after all!

Cheers,
Jen

Veronica Lee said...

I agree. Henry does rock. Before the boys came along, I volunteered my service at a down syndrome centre. The kids were awesome. Special children are truly a blessing. They are the glue that bonds a family.

Lin said...

Nancy--Thank god for mainstreaming!! I think it has helped immensely with the understanding of all kinds of handicaps.

Jen--I agree. I don't hear kids doing that either--well, not in front of adults anyway. I know there are a lot of volunteer programs to get the kids together, which is great.

Veronica--I'm sure it is very difficult to raise a child with a disability of any sort. I watch my neighbors who really struggle with their son who has DS. They don't treat him very nicely and it bothers me terribly. It was great that you volunteered, pally. :)

The Bumbles said...

Thanks for pointing me to Henry's world. My best friend from high school just had a little boy this summer with DS. Since they just moved to a new home in a new state without any supportive family & friends nearby I worry about how she's doing finding her way. So I just shared the link to Christy's blog with her. And I'm looking forward to following her blog myself!